Interview from RCA student

Interview with psychiatrist - Dr. Dorothee

First interviews will be quite casual; and flow as a convo, very much led by the interviewee themselves.

  • 1.  When did you first fall ill, or start to have symptoms in retrospect?

  • 2.  How long did it take to get a "diagnosis"?  How many Dr.'s did not know why you fell ill, or dismissed you prior?  Did anyone ever tell you it was purely "in your head", “anxiety” or "depression"? 

  • What kind of expectations do you have from Dr's?  For example, do you expect them to make you feel more or less understood/ human/ cared for/ hopeful? 

  • 3.  What medical knowledge have you gained yourself?  Through your bodily experience and through what you have learned online? 

  • 4.  Do you feel as you have lost any relationships?  How does your illness affect your relationships (with yourself and others)?  How much of your illness do you hide from others? 

  • 5.  Does your level of hope fluctuate from day to day or week to week or is it steady?  What inspires you these days?  Who/ what enables you to push through?

 

Final survey: 

  • When did you first fall ill, or start to have symptoms in retrospect?

  • Does having an autoimmune disease increase your anxiety? 

  • Where do you want to go/what to you want to do when you’re feeling anxious?

  • How long did it take to get a "diagnosis"?  How many Dr.'s did not know why you fell ill, or dismissed you prior?  Did anyone ever tell you it was purely "in your head", “anxiety” or "depression"? 

  • What kind of expectations do you have from Dr's?  For example, do you expect them to make you feel more or less understood/ human/ cared for/ hopeful? 

  • Does anxiety exacerbate your autoimmune disease? 

  • What aspects of your life make you the most anxious? 

  • What medical knowledge have you gained yourself?  Through your bodily experience and through what you have learned online? 

  • Does your level of hope fluctuate from day to day or week to week or is it steady?  What inspires you these days?  Who/ what enables you to push through?

  • As we all know there is a lot of discrimination in having an autoimmune disease, as many people are ignorant.  What would you like them to know? 

  • Do you feel as you have lost any relationships?  How does your illness affect your relationships (with yourself and others)?  How much of your illness do you hide from others? 

  • What are you working on these days (hobbies or work)?   If you are unable to work now, what would you do if you were healthier?  I find many of us, because of having suffered, realize the necessity of helping of others, is there a particular way you would want to contribute through art, or writing, or being a Dr. etc? 

 

Next step :

  1. Storyboard, 8 crazy’s idea ?

  2. The hero’s journey - find stories and make sure that people will engage and immerse those stories as well.

  3. Can story from people who have anxiety is the first step to express their voices and let people from outside immerse the story? Instead of trying to cure the problem, why don’t we try to tell their story and make their voice to be heard? 

  4. What is the most efficiency way to tell story? - AR/ film/ Installation?

22 April 19

    • In particular part, we are going to continually tell the same story that we divided in the first place. (Steps through the journey)

    • Instead of using a lot of visuals to tell the story in individual parts, we are going to use the main QR code at the beginning of exhibition. It will come up with the picture that autoimmune people was created inside the application and link with AR when participant scan the QR code.

    • Those pictures (or videos) will be attached till the end of spoonies journey

    • Besides the main QR code, we also add another 6 different QR codes. So that people can scan further during walk through each part of spoon. The 6 codes are representative of sounds that autoimmune people have been told. In each sound present as a part of individual story. You have to walk through all the 6 steps to end the story.

    • We going to create an application for autoimmune people. To collaborate with patients, who sometimes cannot move and leave their bed,  to be heard and to be aware. (Which I think this is the most important part of this project.)

  • After we finish all steps of spoon (exhibit and QR code for AR), Participants will be see their story by scanning QR code, however for autoimmune people most of them cannot leave their place so we decide to create an application, their can upload both pictures in library or create by themselves. They also have the right to choose which part that need to tell. Then the pictures will be upload on each spoon in exhibition, so people can see their stories instantly.on, we are going to put a small QR codes. Their job is when we scan them the sounds of immune’s people will be present (which will be related in a particular part). Each part, participant can see the pictures and sounds as well. 

Contact : 
nicha.palwatwichai@network.rca.ac.uk
pairnicha@gmail.com
Call me at 
+44(0) 7 852 286 254
+66(0) 8 210 4443
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